“I think it has a lot to do with the power of hope,” Krista Blomberg said.
Eighteen-year-old Landon Blomberg has suffered from seizures for 14 years. Now, his family is celebrating because his seizures could soon be reduced, or even disappear.
“Lots of congratulations, these flowers, somebody called and said you have flowers at the shop that were delivered for you,” Krista said, “they were for Steve and I and London from some people in the community, just saying congratulations.”
While the signing of the bill was a huge accomplishment, there are more hurdles. For example, finding an adult epilepsy doctor willing to prescribe or recommend the drug.
“The legal process is that it has to be prescribed or recommended by a physician,” Krista said.
Besides finding the right physician, the Blomberg’s will not be able to get the drug until at least next fall.
“Fall is the soonest. There are other people that have been on the waiting list,” Krista said, “they are getting those people off the earlier waiting lists, so that’s what is going to happen with the spring harvest.”
Which Landon would take alongside his current medications. Plus, there is the added cost…
“I won’t be covered by insurance, it’s going to come out of our pocket,” Krista said, “we’re happy to pay it, you just don’t think about the cost that much, what I’m hearing is it might be a couple hundred dollars a month.”
But Krista hopes it will all be worth it.
She has already heard remarkable success stories from epilepsy patients using the drug in Colorado.
“They’re awakening,” Krista said, “and learning all sorts of developmental things that they have been incredibly delayed on because their brains are so tired from seizures that they can’t do anything like that.”
For Landon, the new drug would hopefully means less seizures, and that could lead to more job opportunities. He says he’s inspired to become a carpenter’s assistant.
Something that could one day be possible, simply because concerned parents spoke up.
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