UPDATE: 6/28 at 9:29 a.m.
A benefit is being held this weekend for Violet Thompson.
Violet, 17 months, was born with a chromosomal deletion. She is one of 11 in the entire world with this condition.
Sunday's benefit will assist with financial support for the Thompson family. Violet has endured multiple surgeries, kidney swelling, heart conditions, urinary tract infections, fevers, seizures, a coma, and hearing loss.
The benefit will be held at the Merryland Ballroom off Hwy 66 near Stevens Point on Sunday, June 30th.
The events starts at 2 p.m. There will be live music, food/ beverages, children's activities, a clown and many raffle prizes.
Merryland Ballroom is located at 2405 Wisconsin 66 in Rosholt.
ORIGINAL STORY: 5/23 at 8:01 p.m.
Meet baby Violet.
She has a rare chromosomal condition.
Her parents, Natasha and Jake Thompson say Violet has some medical issues, but she's happy.
"Her genetic deletion doesn't have a name. It's on chromosome 7, and there are only 10 other reported cases of chromosome 7," explains Natasha.
Since Violet was born, she's struggled with kidney swelling, heart conditions, fevers, hearing loss and more. Last May, Violet had surgery on her kidney. After surgery, she started having seizures.
"That was pretty scary," describes Natasha, "she had tubes and wires coming out of just about every orifice."
To try and stop her seizures, doctors put Violet in a coma for over a week.
"She just kept seizing, and seizing, and seizing, and even when they had her so far under the coma," says Natasha, "we could watch the monitor and watch her seize."
Violet has been in and out of the hospital all of her 17 months of life.
And at one point, they almost lost her.
"Her O2 levels just plummeted, and her heart rate was up in the 200s, her lips were starting to turn blue."
While Violet's seizures have nearly stopped, her newest hurdles include something as simple as eating. She recently got a feeding tube and she is supposed to eat every 3 to 4 hours. After feeding, she has to be up for an hour.
A day in the life with Violet is no where near ordinary but she gets lots of help from her big sister, Grace.
"Oh, she's awesome," says Jake, "she's probably the best big sister that Violet could ask for."
Violet's parents say they rarely felt sad about having a child with special needs.
"You just do what you have to do…you just make it work."
Her future, much like the present, is pretty unknown for baby Violet. But her family hopes she can communicate someday, whatever that means for her.
To read the blog written by Natasha, Click Here
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