The numbers speak for themselves.

More than 98,000 people are waiting for organ transplants in the U.S.

And every 13 minutes a new name is added to the list.

Doctors called Beth Kerstetter, 22, the miracle baby.

"She's very lucky to have made it as long as she has as well as she has. She's had a lot of complications over the years, but Beth has done amazingly well, as someone who's had such severe problems as a baby," said Gary Hegranes, M.D., Kerstetter's doctor.

She was born an otherwise healthy infant, 7 pounds, 9 ounces.

But during her initial exam, doctors found a neuroblastoma tumor.

"So at three days old she had surgery and they took a grapefruit sized tumor from her abdomen," says Pam Resch, Beth's mother.

The surgery did a number on her tiny body.

Blood vessels were compromised during the removal.

As a result, she lost kidney function.

"They didn't think they could do a transplant until she was 25 pounds and of course she's not eating, she's not drinking, she's very lethargic," Resch says, "They did give us the choice we could either treat, keep on going, she had many infections...or they said we could let her go but she never gave up so we weren't gonna."

At just four and a half months old, Beth received a kidney from an infant that had passed away.

She went into surgery fragile and gray, and came out colorful, smiling and ready for a bottle.

"So that really turned things around. Her whole life started, right then. And she started just a going and crawling and walking and doing all the things a normal little girl was gonna do," said Resch.

Back in 1987, Beth was the smallest in the world to receive a kidney transplant.

But not too long after, her kidney failed her again.

This time, her grandmother stepped in.

"When they did the exploratory surgery I know they were checking to see how much room they had to place a kidney," says Judy Korn.

She got healthy, and another monumental transplant was successful.

"Yeah, I'm very very blessed and thankful," says Kerstetter.

"I've been able to see her grow into a beautiful woman," Korn said.

Her grandma's kidney lasted until just recently.

Now Beth's body is rejecting it, and she's again going through dialysis, which is all she can do to survive.

"I feel pretty tired at times now," Beth says, " I'm not as energetic as I used to be. I used to ride bikes, rollerblade, walk my dog."

"The position which her kidney was planted in makes it very difficult to try and put another kidney in at this time," Dr. Hegranes said.

Doctors say its impossible for Beth to have another kidney transplant. Complications from surgeries when she was an infant won't allow it

"Right now all the experts tell us no. There's just no way they can try to safely transplant a kidney at this time," he said.

Beth is hopeful one day something can be done, and she'll be able to quit dialysis.

But her determination and positivity remain.

"Never give up!" Beth says.

As for organ donation, her family are advocates.

"It changes lives and if you could ever see the difference between someone that's so sick, the minute they place that kidney in, their cheeks turn pink and they come to life. It really is the gift of life," says Resch.